I was provided a pair of Axon Optics Glasses as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. This review also includes affiliate links which make the author a small commission if utilized by the reader at no extra cost. Please see the Disclosures Page for more information.
“You’re not the only one, I promise.”
The neurologist diagnosed me with Chronic Migraines based on a 10-minute review of my numerous medical records, a 5-minute subjective assessment of mine and my family’s medical history and current symptoms, followed by a limited, 7-minute physical assessment.
Somehow this specialist took all this meta-information to draw out the firm conclusion of Chronic Migraines as the cause of my “neuro issues.” This candidly termed cluster of neurological symptoms includes my experiences of seeing purple and blue colored blobs, light sparkles and blue sprites in my visual field, problems with balance and proprioception, experiencing auditory and sensory changes, numbness and tingling in various parts of my body, a stabbing pain behind my right eye and pulsating temple, finally the right side of my face begins to drop and the mother of all headaches sets in for a few days, at least.
Sometimes, the headache doesn’t set in.
If I could catch it quick enough with liver overloads doses of Ibuprofen the pain would stay behind my eye and in my temple for 3 to 4 days until fading back to aura-like symptoms. Before this appointment and this diagnosis, I couldn’t imagine Chronic Migraines would be the result. Living with a lifetime with severe headaches, I became accustomed to pain and still don’t perceive it as the abnormality it really is! With all my other issues with Vascular Ehlers-Danlos Syndrome, my migraines got lost in all the others pains and distressing symptoms. I took the neurologist’s diagnosis and searched online resources to find out how my symptoms compared to the other 1 billion chronic migraine sufferers estimated to live with the condition across the globe.
Here I am 35 years old, newly diagnosed with Vascular Ehlers-Danlos Syndrome and Chronic Migraines!
My migraine symptoms started with my menses at 9 years old. Now, I understand why my “headaches” were always so debilitating. I am in a constant flux between a migraine with a headache and migraine without a headache. The visual, auditory and other sensory issues worsened over the course of time. Now my nausea and stomach pain have yet another contributing factor. As I take note of my migraine triggers, I better understand a way to live in spite of the disabling nature of this chronic disease.
My chronic migraine triggers are many.
A perfume or cleaner may set it off. Maybe a stressful situation. My premenstrual week is always a sure fire 7-9 day migraine battle. I can’t do diet soda, gluten, soy, dairy or processed sugar and salt as these are definite migraine triggers as well as exacerbating a myriad of distressing symptoms. One trigger is particularly worse than all the others but after several months of using my Axon Optics Migraine Relief Specs, I finally have control over lighting induced migraines!
Light really bothers me by making all my ongoing symptoms worse and triggering migraines with only a little exposure.
The artificial lights at my former workplaces, doctor’s offices, driving, supermarkets and department stores and even in my home serve to trigger this strikingly common disease. Even the artificial lighting produced by the screen on my phone, tablet and laptop trigger my migraines. I recoil, cover my eyes and shriek in pain. One could mistake me for a vampire based on my reaction to different sorts of lighting. Avoiding light proves an impossible task. Hiding away in the darkness is not always a viable option.
Neither are dark sunglasses. Sunglasses only take care of a bit of the problem as most are cheaply tinted and designed for casual use rather than blocking out migraine-triggering light rays. Axon Optics offers an alternative solution to maxing out dosages on popular pharmaceutical treatments by cutting light sensitive migraine triggers off at the pass. These glasses provide an effective barrier between my photophobic eyes and light triggers. While I strive to be on the least amount of medications and supplements to counteract my diseases processes, I ‘m still taking 26 different pills, some multiple times a day. That’s Chronic Illness Life with Ehlers-Danlos Syndrome, I suppose! Nonetheless, my Axon Optics glasses are working and I am happy to report I am using less “as needed” medications to manage my migraines, just as I hoped!
This is important! Months ago when diagnosed with Chronic Migraines, I was taking 1800 MG of Ibuprofen a day to control migraines and EDS-related pains! Not only was this amount causing me medication overuse-induced headaches, but it was also making all my gastrointestinal issues much worse. Between eliminating Ibuprofen and using Axon Optics Migraine Relief Glasses to control my exposure to light triggers, my migraines have gone from nearly daily to only five or six a month. This improvement helped me tremendously!
With Axon Optics Migraine Glasses, I get more work done on my blog! Being on the computer for extended periods no longers triggers my symptoms as it once did. Turning the screen brightness down and using light reducing filters only helped so much but with using Axon Optics I’m able to use full-screen brightness without issue! Honestly, this is the most exciting part about these glasses for me because most of my social interaction and creative endeavors are achieved via the computer or some other similar light emitting/migraine inducing device. Of course, many other facets of my chronic illness still play into effect but for each symptom I gain control over, I improve my wellbeing despite the disease process.
Axon Optics boasts 15 years of migraine community support offering the FL-41 Migraine Lense technology developed by Dr. Bradley Katz, founder of Axon Optics and neuro-ophthalmologist at the University of Utah. The Axon Optic’s website lists clinical studies supporting the theory that by filtering certain light forms, the severity and incidence of migraines in participates was decreased.
I’ve worn these glasses everywhere almost every day since they arrived via Amazon. I couldn’t be more thankful for the opportunity to review these glasses for the Chronic Illness Bloggers Network! I decided upon the HANNIK style with outdoor lenses because I wanted something that would provide me both indoor and outdoor relief without having to constantly switch out my specs!
The HANNIK style is definitely darker than the indoor lenses. This actually works well for me as I’m awkwardly self-conscious about eye contact and find it difficult and distracting during a conversation, most particularly with acquaintances, strangers, and most definitely medical practitioners. The darker lens makes eye contact feel less intimidating, thus decreasing my overall anxiety.
For example, during my latest primary care visit, the doctor asked me about my Migraine glasses. I explained my photophobia and took off the glasses to instantly be hit with painful spasms in my eyes from the fluorescent lights along with immediate confusion and inability to answer further questions. I put the glasses back on, my eyes readjusted and I was able to continue speaking. I recall so many doctor’s office visits being distracted and in pain due to the lighting! There’s really something to this light sensitivity thing and these glasses are a great, non-pharmacological way to avoid the effects!
It took a few days of gradually wearing the glasses for longer periods to get used to the weight. For a few days, a sore spot developed on my nose and behind my ear, where a pesky mole lives, right wear any glasses frame sits. This is a typical adjustment with any new glasses and dissipated by the end of the first week. I love how the glasses form snugly around my eyes to block out periphery light. The padding on the nose, around the eyes and at the tips of the frames make these glasses stay firmly in place which is nice since this a frequent problem I’ve had with glasses in general. Here’s a quick video review I did after the first couple days of using these glasses.
The price is more than I would typically spend on a pair of glasses but after using these glasses the level of relief is so significant I would consider them a steal for $169 USD on Amazon considering the prices of prescription medications to control migraines, both fiscally and in the form of side effects. The high quality is notable in the durability of the glasses. My glasses came with a padded case I can clip to my purse and a large cleaning cloth. I recommend giving these glasses a try if you suffer from migraines or sensory issues triggered by light.
This is mega for the savvy Spoonie to carry along in their arsenal! Finding a Spoonie unbothered by light sensitivity is like finding a needle in a haystack! Whether it be medication side effects, disease processes or just plain old Migraines, photosensitivity is a big issue for those living the chronic life. Axon Optics eliminates the issue from day one! If you have issues with lighting triggered migraines or sensory issues, these glasses are absolutely for you!
Thanks for reading my Axon Optics review! I can’t say enough good things about these migraine glasses!
Also, check out my other Spoonie Product Reviews for The Faye Farm’s CBC Rejuvenation Lotion for musculoskeletal pain and SYLK’s All-Natural Personal Lubricant for treating vaginal dryness as a symptom of chronic illness! Please subscribe for updates as more Chronic Illness Content is in the works! Hearts and Spoons, yo!